Tuesday, May 12, 2009

Day 45

Those of you who are still actually checking this blog will be happy to know that Tessa is making great strides in her improvement.

She's pretty much walking all by herself.

She's starting to talk much more and her sense of humor has come back strong.

She still has the feeding tube which we're trying to find ways to get around in terms of alternate ways of getting her the required nutrients and medications. If we're successful with some of our methods, we can pull out that tube, leaving only one last tube...her catheter for dialysis.

Tessa's kidneys still have not regained alot of function. She is urinating and although her kidneys are successfully transferring liquids to her bladder, they aren't yet doing the best job of filtering out all the toxins or waste products in her system. As a result, Tessa will continue doing dialysis three times a week until either her kidneys regain a more normal/sustainable level of function or until she is required to have a transplant. Obviously we're hoping we can do everything to avoid the latter but it's almost entirely up to her kidneys. We've been regulating her diet pretty closely so that she' eating kidney friendly food but it's been tricky trying to keep her potassium and phosphorus levels low so as to avoid high blood pressure.

In any case, she's regaining energy and quickly getting back to her old self which is so great for all of us to see. It's been like a re-birth in many ways or like condensing 1 year of development into a week and half. Who knows what she'll be saying or doing in another week.

6 comments:

  1. Erik: Of course Tessa's loyal legions are still reading this blog. Tessa looked and seemed so good Sunday that I think seeing and experiencing her took at least five years of aging away. I actually read today that kidney beans are good for kidney functions, though I realize they would be hard to get down a feeding tube :) --perhaps you could add a few to her cheeseless quesadillas??
    I am voting for you two as parents of the year!
    Actually, the only reason I opened the blog today was to link it to an e-mail that I sent to Bobby Litts. I am glad I did. Adios.

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  2. Great Tessa !!!

    Estem molt contents que continuis millorant. La Livia i la Flavia t'envien molts petons i fortes abraçades.

    Per cert, ahir el Barça va guanyar la Copa del Rei (4-1, contra l'Athletic de Bilbao). Celebrarem el títol pensant en tu !!!

    fins ben aviat Tessa !

    Els italocatalans

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  3. I, too, still have you in my reader and love reading the updates. See you soon!

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  4. Its great to get these updates, particuarly with this type of news. Thanks for posting.

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  5. Just got your blog from Judy Cooper. So thankful that you are all home together. Wilson and I send all of you the best possible wishes. Your neighbor, Jane Cheshire-Allen

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  6. Hi ERik and KT- I was Tessa's nurse at Marin General when she was admitted. I work the night shift and I went home that morning, fell asleep and woke up at noon thinking of Tessa. I called the hospital and the day nurse told me she was transfered to CPMC.
    I and several other staff members here were following her progress @ UCSF. You all have been in my thoughts and prayers almost daily. I'm so grateful to have Tessa's blog to follow!!! I knew Tessa's strength from the first few minutes of taking care of her...she is unbelievably resilient and adorable!!!!

    Karyn Gordon

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